Inherited Bleeding Disorders - Haemophilia and von Willebrand Disorder
Imagine having a 12-yr old child with chronic arthritis. How does this situation even eventuate, and how would you deal with this? Sadly, this can be the reality for children born with a genetic abnormality that affects their ability to clot. Bleeding into joints is a frequent symptom of these inherited bleeding disorders, and a manifestation that must be dealt with prophylactically if chronic conditions are to be avoided.
Joanna McCosker is a Paediatric Clinical Nurse Consultant working at the Lady Cilento Children’s Hospital in Brisbane, Australia. Joanna has been working as a paediatric nurse for 25 years and has been working with the haemophilia community for over 10 years. She has been a member of International and Australian Nursing Groups and is a study nurse for the long acting factor 8 research trials at her hospital. She is committed to improving haemophilia care through innovative treatment practices and research. She loves working with new families and teenagers, as she believes these are critical points for education and treatment adherence. She has recently graduated from QUT Masters of Nursing Science – Nurse Practitioner. She hopes to improve care and education of women with bleeding disorders focusing on carriers of haemophilia by implementing clinics for women and carriers. Outside of work Joanna is Mum to a 14-year-old daughter, 12-year-old son and 6-month-old Staffy pup. She loves travelling with her husband Anthony and would happily live in Bali forever. She is also an active member of Surf Lifesaving and volunteers her time to foster lifesaving with the young “Nippers” of the future.