Ageing with Autism
Published: 02 April 2017
Published: 02 April 2017
‘To be blunt, because autistic people can be blunt – why do I even need to argue the case for research into autism and ageing?’
As bluntly stated by Michael in Autism (2016), in order to gain high quality services or healthcare for the ageing population with autism spectrum disorder (ASD), there needs to be excellent research occurring.
Autism Spectrum Australia states that there is unfortunately insufficient research regarding ageing and ageing outcomes for people with ASD. Howlin et al. (2015) indicate that the majority of ASD research is based on studies on children.
Moreover, Bishop-Fitzpatrick, Minshew and Eack (2013, cited in Howlin et al. 2015), express that the limited adult intervention research is of a reduced quality and Taylor and Selzer (2012) (cited in Howlin et al. 2015) claim that support for adults with ASD is comparatively inadequate, to that available for children with ASD.
Not only this, but ‘around 70% of people with ASD over 55 years of age may have only been diagnosed in the last ten years (NAS, 2013).’ (Autism Spectrum Australia n.d.). The World Health Organisation (2014) highlights that there is a likelihood that some people in healthcare facilities may even be undiagnosed, misdiagnosed and therefore may be left untreated.
All of this evidence shows that there is a strong need for health professionals to build public awareness. Global events, like World Autism Awareness Day (2 April), are providing a great opportunity for this.
WHO recommends that long-term care for people with ASD is done in the community setting as opposed to residential facilities, thus suggesting that health professionals can support older Australians with ASD by providing professional, ethical, and person-centred nursing care.
Evidently, this may mean that additional community resources such as funding for healthcare workers, services, and multidisciplinary professionals may be required to meet long-term care needs of Australians with ASD.
Did you know that as many as 1 in 100 Australians have been diagnosed with autism spectrum disorder (ASD) (Autism Spectrum Australia n.d.)?
ASD is described as being a lifelong and disabling condition, which is interestingly diagnosed from behaviours (Australian Bureau of statistics 2014). The Australian Bureau of Statistics (2014) stated that there were nil medical tests for diagnosis of ASD. The University of Queensland Australia Queensland Brain Institute (2013) conveyed that boys are four times more likely to be diagnosed with ASD, compared to girls.
‘Compared to men who had children when they were 20–24, men who had a daughter when they were 50 or older were 1.79 times more likely to have a grandchild with autism and those who had a son were 1.67 times more likely to have a grandchild with autism.’
(The University of Queensland Australia Queensland Brain Institute 2013)
Due to the ageing population in Australia, there is an increased need for support and care of people with ASD (Autism Spectrum Australia n.d.). The World Health Organization (WHO) (2016), express that there is a stigma towards people with ASD at a global level. They state that people throughout the world with ASD unfortunately may experience discrimination, violations of their human rights and a lack of accessibility to needed services.
According to Howlin et al. (2013), not many people with ASD and an IQ of under 70 can live independently in their adult lives.
Howlin et al. (2013) found that:
‘For most individuals with autism who had an IQ in the average range (i.e. ≥70) as children, childhood IQ proved a reliable predictor of cognitive functioning well into mid to later adulthood. However, a significant minority was no longer testable on standard tests as adults.’
Here is some background information on ASD (WHO, 2016):
This World Autism Awareness Day, let’s focus on how we can better provide healthcare for autism spectrum disorder in ageing.
One way of getting involved is by heading to Walk for Autism.org. The Mid North Coast Local Health District and Autism Spectrum Australia are celebrating with the Walk for Autism between April 2nd-9th, and a goal of raising funds and awareness for people on the autism spectrum.
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Madeline Gilkes, CNS, RN, is a Fellow of the Australasian Society of Lifestyle Medicine. She focused her master of healthcare leadership research project on health coaching for long-term weight loss in obese adults. In recent years, Madeline has found a passion for preventative nursing, transitioning from leadership roles (CNS Gerontology & Education, Clinical Facilitator) in hospital settings to primary healthcare nursing. Madeline’s vision is to implement lifestyle medicine to prevent and treat chronic conditions. Her brief research proposal for her PhD application involves Lifestyle Medicine for Type 2 Diabetes Mellitus. Madeline is working towards Credentialled Diabetes Educator (CDE) status and primarily works in the role of Head of Nursing. Madeline’s philosophy focuses on using humanistic management, adult learning theories/evidence and self-efficacy theories and interventions to promote positive learning environments. In addition to her Master of Healthcare Leadership, Madeline has a Graduate Certificate in Diabetes Education & Management, Graduate Certificate in Adult & Vocational Education, Graduate Certificate of Aged Care Nursing, and a Bachelor of Nursing. See Educator Profile